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Showing posts from July, 2026

Status: July Progression

 Good news with no big changes as I see it. My sleep is a little better especially in last few days.   Swallowing and breathing is a little tougher but my coping skills have really improved. And it's only 103 outside today. Maybe my view of Good news is also part of the coping but I'll take it.  Enjoy the cool weather if you have it.

Reflections: Great 4th of July!

 My niece/editor came to visit from Colorado this weekend and as we said goodbye she warned that I better have a reflection ready for her to review by the time she landed this evening.  She is so lovely but that redhead can be intimidating when necessary. So here we go.  Two weeks ago I started getting ALS muscle twitches under my left eye similar to what  I experience with other muscles but this was the first time near my eye.  I didn't think much of it until I started to experience a vision issue similar to an ocular migraine where gray blotches cloud my vision.  I've had ocular migraines before but they've never lasted more than a minute or two and these were lasting longer and when they stopped I still had some distortion in my vision.  When I told my ALS team about it they said to get to hospital ASAP in case it was a retinal tear.  They diagnosed me with a common condition for people over 60 that should go away on it's own and so I'll go for...